Born October 29th, 2010 at 7pm! 7lbs. 13oz. After a few days, much turmoil and agony on the parents part, we finally decided to name him Jett Thomas Harrison. I have liked the name Jett for quite a long time now, but hesitated because ONE: a good friend recently named her baby Jett and as it is an uncommon name I wasn't sure if I should do it as well, although the two boys are very likely to never even meet. When I was early in my pregnancy and didn't know the gender yet, this friend had her baby and when I saw she named him Jett, I actually kind of hoped that our baby would be a girl so I wouldn't have this dilemma :) Reason number TWO: a lot of people had really negative reactions when we told them Jett was on our list of names. Funny though, ever since we officially named him Jett, everyone LOVES his name!
We feel so blessed to have Jett, and can not wait to bring him home. He has been in the NICU, and on Tuesday, Nov. 2nd, he was transported by and emergency transport team to Baltimore to the University of Maryland Med Center. He has Hirschsprung Disease, as well as Ichthyosis. The Ichthyosis is more towards the milder version, and has improved since birth, as he has been slathered every few hours with Aquaphor to keep his skin hydrated. It seems we will be able to control this aspect of his health quite well.
Hirschsprung Disease, on the other hand will ultimately be okay, but he requires surgery which will take place on Monday. Part of his colon will be removed and the good part will be reattached. Last Tuesday when he was transported to Baltimore his belly was so huge from not being able to pass stool (or two suppositories) that he was at risk or rupturing his colon. He was very fussy and looked so uncomfortable. Since then, the doctors have been cleaning out his colon and his belly has gone down more than 5cm in girth.
A long time ago this diagnosis was lethal. We feel very blessed that there is a procedure now to fix this and that he is expected to live a normal, healthy life. We thank our Heavenly Father for the opportunity to live at this time when there is so much medical knowledge. All of the nurses and doctors have been absolutely fabulous!
Every night when we leave the hospital, I feel like I am forgetting something, and I look around at what we are carrying, and know we have all our bags, jackets, etc. and then realize the feeling must be that we don't have our baby. We are expecting to be able to bring him home next weekend. We.Can't.Wait. Please keep him in your prayers tomorrow!
P.S. In the picture, we have crafted his hair into a faux hawk. It is always so greasy from the ointment, we like to style it :) Also, he doesn't have the tube in his nose anymore... it is now in his mouth, going down to his belly, to suck out anything and everything in his belly (mostly just gastric juices now, he hasn't eaten since Tuesday morning and is on IV's.) The bandage on his hand is for his IV.
5 comments:
Oh Ash, he is adorable!!! I LOVE his name too!! Haha!! I'm glad you named him Jett... and I think it would be great if our two Jett's did get to meet. Actually, Reese just came up and was looking at the pictures with me and she just asked it Tage could come over again. We'll keep you all in our prayers and pray that the surgery goes well on Monday. Congrats to your beautiful family!!
I'm so glad he's here, Ash. He is darling and I love the name Jett. AWESOME!
he is so handsome! he will for sure be in our prayers poor little guy. (you and your kids poop problems!) i'm so glad he made it safely and i love the name jett!
Congrats! He really is such an adorable little boy! So cute! I just read up on his conditions. I hope that the surgery went well yesterday. It's truly amazing what resources we have these days. You guys have a beautiful family!
Oh this is great! I was following your Momma's facebook posts, but I'm so glad to hear from you! We will be praying for you; glad to know he's doing okay. Can't wait to see you take him home!!
I love the harrisons.
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